Use of an outcome by gestation table for extremely premature babies: a cross-sectional survey of the views of parents, neonatal nurses and perinatologists.

OBJECTIVES: To promote family-centered care and strengthen the process of informed consent it is essential that parents have access to information on the problems their baby may face. We have constructed an Outcome by Gestation Table (OGT) with information on survival, short-term complications plus treatments of the most recent cohort of babies born at different gestations from 23 to 28 weeks. This study documents the views on the table from parents of babies < 29 weeks gestation, neonatal nurses, and doctors.

STUDY DESIGN: A copy of the OGT and a questionnaire seeking views regarding the OGT was sent to the parents' support group (Preemie-List), 71 randomly chosen perinatologists in Australia and to the 35 nurses working in our NICU. Differences between groups were analyzed using chi 2 analysis.

RESULTS: Forty-eight parents participated in the study. Forty-three (60.5%) doctors and 24 (68.5%) neonatal nurses replied. The three groups agreed that the OGT is not misleading. The majority of doctors feel that the table: is easy to understand but has too much information; is useful but they are ambivalent about using it in their practice. The results were highly significant with parents being most positive and accepting of the OGT, next nurses and finally doctors.

CONCLUSION: It is important to seek the views of both consumers and carers on any aid in communication in the NICU.